Ask your Legislator to support the Harley Jacobsen Act

The Harley Jacobsen Clinical Trial Participation Income Exemption Act (H.R. 4184) needs your support to remove barriers that prevent millions of Americans from participating in vital medical research. Under current tax law, payments to clinical trial participants are considered taxable income, which can disqualify low-income patients from receiving critical benefits like Medicaid and SNAP. This unintended consequence blocks more than 100 million Americans—roughly 27% of the population—from contributing to the development of new treatments. The HJ Act would make all clinical trial compensation tax-exempt, ensuring that those who volunteer for medical research are supported rather than penalized for their crucial public service in helping bring life-saving treatments to patients who need them most.


We encourage you to reach out to your U.S. Representative in Congress to show your support for the Harley Jacobsen Act (H.R. 4184). You can do so in the following ways:

  1. Find your U.S. Representative by CLICKING HERE.
  2. Enter your zip code to find your Representatives, then follow the link to their contact page, where you can paste your message into a contact box or get your Representatives’ email address.
  3. Use the sample text below, edited with your name and any other details.
  4. Or, if you would prefer to call your Representative, you can use the phone call script below, and call your Representative using the phone number found on their website.

EMAIL / CONTACT LETTER TEMPLATE

Letter Supporting the Harley Jacobsen Clinical Trial Participation Income Exemption Act

Dear Rep. [Member of Congress],

As a constituent and advocate for medical research, I urge you to support the bipartisan Harley Jacobsen Clinical Trial Participation Income Exemption Act (H.R. 4184) — legislation that is essential to removing barriers that prevent Americans from participating in vital clinical research.

Clinical trials are the foundation of medical progress, yet more than 100 million Americans — roughly 27% of our population — are effectively barred from participating due to an unintended consequence of our tax code. Current law treats payments to clinical trial participants as taxable income, which can disqualify low-income patients from receiving critical benefits like Medicaid, SNAP, and other social welfare programs.

This creates a cruel choice: participate in research that could lead to life-saving treatments for others, or maintain access to the healthcare and support services you need to survive. No one should be forced to choose between contributing to medical science and keeping their essential benefits.

Unfortunately, this tax burden disproportionately impacts the very populations we most need in clinical trials — diverse, underserved communities whose participation is crucial for developing treatments that work for all Americans.

Clinical research is a public necessity, and those who volunteer their time, health, and wellbeing to advance medical knowledge are performing a crucial public service. They should be supported and celebrated — not penalized by our tax system.

The Harley Jacobsen Act would make all clinical trial compensation tax-exempt, ensuring that financial barriers don’t prevent willing participants from contributing to the development of tomorrow’s cures. This simple change would dramatically expand access to clinical trials and accelerate the pace of medical breakthroughs.

Please support the Harley Jacobsen Clinical Trial Participation Income Exemption Act (H.R. 4184) to support medical innovation and ensure that all Americans can contribute to advancing the treatments that will save lives across our country.

Thank you,

[Your Name]

 

PHONE CALL SCRIPT

Hello, my name is _______________ and I am a constituent in Rep. [Member of Congress]’s district, at [your address]. I am calling to urge Rep. [Member of Congress] to support the Harley Jacobsen Clinical Trial Participation Income Exemption Act. The bill number is H.R. 4184, and it’s a bipartisan bill sponsored by Rep. Mike Kelly and Rep. Chrissy Houlahan.

This bill will remove tax barriers that currently prevent more than 100 million Americans from participating in clinical trials. Right now, people who volunteer for medical research can lose their Medicaid, SNAP, and other essential benefits because trial payments count as taxable income.

This forces individuals to choose between participating in research that could lead to life-saving treatments for others, or maintaining access to the healthcare and support services they need to survive. No one should be forced to choose between contributing to medical science and keeping their essential benefits.

Clinical research is a public necessity, and those who volunteer their time, health, and wellbeing to advance medical knowledge are performing a crucial public service. They should be supported and celebrated — not penalized by our tax system.

That’s why I’m calling to encourage Rep. [Member of Congress] to support the Harley Jacobsen Act.

Thank you.

Other Ways to Spread Awareness:

Share information about the Harley Jacobsen Act on social media:

Use your platforms to educate others about this bill and encourage them to get involved. 

Participate in advocacy campaigns:

Sign your support on the Change.org petition to support the Harley Jacobsen Act.

Organizations like Mural Health and AAMC are actively endorsing this bill and may have opportunities for you to get involved. 

Inform your community:
Talk to your friends, family, and neighbors about the Harley Jacobsen Act and encourage them to support it. 

Harley Jacobsen Act Benefits

By making all clinical trial compensation tax-exempt, the Harley Jacobsen Act will:

  • Preserve patient access to critical healthcare benefits while participating in research.
  • Protect individuals from having to choose between contributing to medical science and maintaining their healthcare coverage.
  • Facilitate broader participation from diverse communities essential for effective treatment development.