Familiarity with Mental Health Clinical Research

This first survey is directed at patient advocates working at local and/or national advocacy organizations and/or those working at local or national non-profit community service organizations that focus on serving individuals with mental illness.

Familiarity with Mental Health Clinical Research

This survey is directed at patient advocates working at local and/or national advocacy organizations and/or those working at local or national non-profit community service organizations that focus on serving individuals with mental illness.

* Name of your organization

* Your professional role/title:

* Years of experience in mental health advocacy

1-3 years

3-5 years

5+ years

* How familiar are you with mental health clinical trials?

Not familiar

Slightly familiar

Moderately familiar

Very familiar

* Have you ever received training or informational resources about mental health clinical trials?

Yes

No

* How would you rate your overall perception of mental health clinical trials?

Very positive

Somewhat positive

Neutral

Somewhat negative

Very negative

What factors most significantly influence your perception of clinical trials? (Please select all that apply)

Personal experiences

Media reports

Educational materials

Patient testimonials

Professional peers

Other (please specify)

If Other was selected, please specify

* How safe do you believe mental health clinical trials generally are for participants?

Very safe

Somewhat safe

Neutral

Somewhat unsafe

Very unsafe

What concerns, if any, do you have regarding patient safety in clinical trials?

* Would you feel comfortable referring individuals you work with (patients/clients) to a mental health clinical trial?

Yes

No

Unsure

lease briefly explain your answer

What types of information or resources would help you feel more comfortable referring patients to mental health clinical trials?

How would you prefer to receive this information? (Select all that apply)

Webinars

Workshops or training sessions

Printed materials (brochures, pamphlets)

Email newsletters

Online resources

Direct communication with clinical trial representatives

Other (please specify)

If Other was selected, please specify

Please share any other thoughts or suggestions regarding mental health clinical trials or improving advocacy staff understanding of trials.

Advocacy Familiarity Survey

This survey is for trial participants and on their familiarity with advocacy organizations.

*Note: For this next survey, I pulled out the conditional formatting so that all fields are visible. Under normal circumstances, fields like “Please provide your email address…” would only show up if ‘YES’ was selected on the previous question.  Same with the “If you selected ‘Other’ questions.

* Are you familiar with any local mental health advocacy organizations?

NAMI

MHA

DBSA

Other local mental health organization

Not familiar with any advocacy organizations

If you selected Other above, what local organization are you familiar with?

Would you like information on local advocacy resources?

Yes

No

Please provide your email address so that we can send you information on your local advocacy resources.

* Have you ever contacted or used any advocacy organization's resources?

Yes

No

If you have used advocacy services, which ones have you used?

Referral services to local resources

Peer Support Group Meetings

Family Support Services

Educational information on my illness

Other

If you selected Other above, what service have you used?

If you could have help with ONE THING, what would it be (medical resources, transportation assistance, food, housing, etc.)?