Volunteer Transition Workgroup:
Supporting Study Volunteers Beyond the Trial

Helping to maintain your study volunteers’ wellness shouldn’t end at the conclusion of a study.

*Please Note: The information on this page is still being developed. To submit comments, resources, or to join the working group, please contact us!

Why Include Volunteer Transition Activities?

Clinical trials play a critical role in advancing mental health research and treatment, but what happens when the trial ends? Ensuring that study participants continue their recovery journey is essential. The STARR Volunteer Transition Workgroup is dedicated to supporting volunteers as they transition out of clinical trials and back to their everyday lives. Here’s why this effort is crucial:

  • Continued Recovery: Transition support helps participants maintain the progress they achieved during the study.
  • Volunteer Retention & Future Engagement: Keeping in touch with volunteers ensures they remain connected to mental health research and can be invited to future studies if they are interested.
  • Data on Retention & Recovery: Tracking volunteer outcomes can provide valuable insights into long-term recovery and engagement, helping improve future research initiatives.

Best Practices for Transitioning Study Volunteers

Successfully transitioning study participants out of a clinical trial requires thoughtful planning. Below are some best practices for ensuring a smooth transition:

  • Early Planning: Discuss transition resources with volunteers before the study ends to set expectations.
  • Personalized Resource Packets: Provide each participant with a tailored packet containing relevant community resources.
  • Follow-Up Support: Consider periodic check-ins via phone, email, or text to see how volunteers are adjusting.
  • Collaboration with Care Providers: Encourage study volunteers to maintain ongoing relationships with their mental health providers and support systems.
  • Encourage Peer Support: Connecting volunteers with others who have gone through similar experiences can be incredibly beneficial.

Addressing the Stigma of Mental Health Research Participation

Many study volunteers face stigma not just for their mental health conditions but also for their participation in clinical research. To help combat this, we provide resources that educate and empower volunteers.

  • Participant Testimonials: Read stories from past study volunteers sharing their positive experiences and how participation helped their recovery journey.
  • Myth vs. Fact: Learn about common misconceptions regarding clinical trials and the realities of mental health research.
  • Why Your Participation Matters: Discover how your involvement contributes to groundbreaking advancements in mental health treatment.

Alumni Network & Community for Past Participants

We encourage former study volunteers to stay connected and engaged through our Volunteer Alumni Network.

  • Join our private online community to connect with others who have participated in clinical trials.
  • Subscribe to our email newsletter for updates on mental health research, upcoming studies, and additional support resources.
  • Become an ambassador or mentor to support new study participants as they navigate their transition.

Long-Term Support & Self-Advocacy

Recovery doesn’t stop when a study ends. That’s why we offer extended support and advocacy resources:

  • Self-Advocacy Tools: Learn how to speak up for your mental health needs and ensure continued care.
  • Patient Advisory Boards: Get involved in shaping future research by providing feedback to clinical teams.
  • Post-Study Navigation Toolkit: Access tips for maintaining progress, handling challenges, and finding additional care options.

FAQs for Study Volunteers and Caregivers

We understand that volunteers and their families may have questions about life after a clinical trial. Our Frequently Asked Questions (FAQ) section provides answers to common concerns:

  • How do I stay in touch with my study team?
  • Will I continue receiving the treatment I was given in the study?
  • What are my rights after the trial ends?
  • How do I get involved in future studies or advocacy efforts?

Recognition & Appreciation for Study Volunteers

We deeply appreciate every individual who participates in mental health research. Your contribution helps advance treatments and improve lives. Thank you for being a part of this vital work!

 

What’s Included in Our Resource List?

The resource we’ve included offer a variety of options to help study volunteers transition successfully, including:

  • Self-Help Guides and Information: Tools for people living with serious mental illness.
  • Peer Support Groups: Networks of individuals who share experiences and provide emotional support.
  • Community Centers: Local organizations offering wellness programs, counseling, and recreational activities.
  • Career Support Services: Job training programs, employment assistance, and vocational rehabilitation services.
  • Housing Resources: Transitional and permanent housing solutions for those in need.
  • Nonprofit Mental Health Organizations: Groups that offer educational materials, helplines, therapy referrals, and advocacy services.

We believe that by offering these essential resources, we can help ensure that clinical trial participants continue on a path toward sustained mental wellness.

For more information on the STARR Volunteer Transition Workgroup or to access our resource list, please reach out to us today.

 

Where Our Resources Come From

The STARR Volunteer Transition Workgroup has gathered resources from highly regarded mental health organizations. These resources have been carefully curated to ensure that study participants receive the best support available. Our partners and contributors include:

  • National and local mental health organizations
  • Peer support networks
  • Government and nonprofit agencies specializing in mental health and recovery

For more information on the STARR Volunteer Transition Workgroup or to access our resource list, please email action@thestarr.org.

Workgroup:

Jim Bentley, NBCR
Bruce Trimble, Pillar
Advocacy TBD
Erica Moore, The STARR Coalition