In case you missed our newsletters, take some time to browse them below:
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STARR August 2022 News: Overdose Awareness Month, National Alliance for Eating Disorders Podcast, Update on 988, and so much more…
August is Overdose Awareness Month and we’ve got the links to support overdose awareness. We can all take action to address the overdose epidemic and enhance our support for individuals facing substance use disorder so that we can save lives.
Our Director of Advocacy and Community Engagement, Mallory Mercer, brings us the latest STARR Podcast with Johanna Kandel, Founder and CEO of The National Alliance for Eating Disorders. We know that a few of you are working on eating disorder studies and we wanted to introduce you to Johanna, who is a great resource.
We’ve got an update on the status of the mental health lifeline 988 that launched July 16th, some good info, and links to the 988 Partner Toolkit from SAMHSA. We encourage everyone to check out SAMHSA’s 988 Partner Toolkit and download, use, and share the available resources!
Check out this month’s Advocacy Ace spotlight with Erzie Nagy of Woodstock Research Center, who raised $650 for their local NAMI affiliate through their participation in Project RockSTARR.
With Back-to-School season in full swing, we’ve included some information from The Jed Foundation on supporting students’ mental health as they head off to school.
In this month’s ‘In Case You Missed It’ section, we’ve brought you info on Karuna Therapeutics’ results from their KarXT P-3 study (all good!), a report on how one’s environment influences the development of psychosis, lab-grown modular neural networks, and newly-released research on mothers, attachment, and incidence of adult anxiety and depression.
We’ve updated the Upcoming Events listings and included a new section on News from the Certified Sites, brought you a new site survey question, and much more!
STARR July 2022 News: BIPOC Mental Health Month, Project People-USA Podcast, Update on 988 Launch, and so much more…
July is BIPOC Mental Health Month and we’ve got the links to activities and events that bring awareness to and support the mental health of Black, Indigenous, and People of Color (BIPOC). Learning about how culture and identity factors affect mental health is the first step to addressing inequality and ensuring everyone has access to mental health care.
Our Director of Advocacy and Community Engagement, Mallory Mercer, brings us the latest STARR Podcast with Steve Miccio, Founder of People-USA. Steve’s unique model of crises intervention and respite housing is helping thousands of people during and well after their mental health crises and is an important new model for these services.
With the new mental health lifeline 988 launching across the country on July 16th, we’ve got your info and links to resources. We’ll keep you updated on the launch as it progresses!
Check out this month’s Advocacy Ace spotlight with Allison Laska at UCONN Health, who raised over $800 for their local NAMI and MHA offices through their participation in Project RockSTARR, and the Upcoming Events listings.
Finally, in this month’s ‘In Case You Missed It’ section, we’ve brought you info on an NIH study’s findings on how immune response triggered by Covid-19 may damage the brain; a study on how psychosis is influenced by neighborhood; links to father-child depression regardless of genetic relatedness, and much more.
STARR June 2022 News: PTSD Awareness Month, Project RockSTARR update, an ADAA diversity resource, and so much more…
June is PTSD Awareness Month so whether you are involved in a PTSD trial or not, be sure to help spread some education on PTSD. We’ve got a list of resources for you to share with your patients and volunteers.
Our Director of Advocacy and Community Engagement, Mallory Mercer, was delighted to meet so many of you at ASCP and included a note in this month’s newsletter.
You don’t want to miss the ADAA’s new Inclusive Language Guide, which they’ve developed with help from the American Psychiatric Association. The guidelines aim to raise awareness, guide learning, and support the use of culturally sensitive terms and phrases that center the voices and perspectives of those who are often marginalized or stereotyped. The STARR Coalition is a long-time proponent of the importance of the language that we use and the ADAA’s new Guide is so good that we’ve added it to our site (see the Language Module under the Certification area)!
Check out this month’s podcast spotlight with Chris Bullard, who founded the Sound Mind Music Festival for Mental Health (an event to watch, as they are looking to explode on the scene at SXSW), an article on the upcoming launch of the new mental health lifeline 988 (are we ready?), a call for grant proposals from the Dana Foundation, and an updated Upcoming Events section.
Finally, let us hear from you on this month’s survey question: Do you survey your research volunteers during or after the clinical trial? And check out the results from last month’s survey on getting volunteer’s input on studies.
STARR May 2022 News: Mental Health Awareness Month, new STARR Podcast, this month’s Advocacy Ace Awardees, and so much more…
May is Mental Health Awareness Month! Check out the latest topics and toolkits from our advocacy partners, as well as some phenomenal events including the Sound Mind Music Festival for Mental Health and the 2022 Mental Health Action Day.
We’re keeping an eye on the Sound Mind Music Festival for Mental Health — they have big plans and the potential to be the SXSW for mental health awareness — we’ve provided a sneak peak at the founder’s podcast about the Festival, which we’ll spotlight next month.
This month’s podcast spotlight is on Dr. Lynda Gargan, who serves as the Executive Director for the National Federation of Families, which links more than 120 state and local affiliates and national partners focused on the issues of children and youth with emotional, behavioral, or mental health needs and substance use challenges and their families.
We’ve also got a new Volunteer Voice and an updated Upcoming Events section, along with a poll on collecting volunteer input on studies. We’ll share the results next month!
STARR April 2022 News: Volunteer Month, Spotlight on the STARR Sponsor of the Year, this month’s Advocacy Ace Awardees, and so much more…
Arguably one of the most important months to celebrate — April is National Volunteer Month! Get the facts in the April STARR Newsletter.
We’ve also featured the STARR Sponsor of the Year, Karuna Therapeutics, along with another RockSTARR Advocacy Ace, and new advocacy partner, the National Federation of Families.
We’ve added a section with relevant news items you may have missed in April, as well as a great article on Study Retention Considerations.
We’ve got the usual Volunteer Voice and an updated Upcoming Events section.
STARR March 2022 News: National Women’s History Month, Spotlight on the STARR Lew Yagodnik Awardee, this month’s Advocacy Ace Awardee, and more great info…
Learn more about Paul Jaquith, the STARR Lew Yagodnik Award Winner, along with another RockSTARR Advocacy Ace, and new advocacy partner, Letters from Strangers.
Also this month, we’ve included an update from the American Brain Coalition on Congress’s newly released 2022 omnibus appropriations agreement, as well as March’s Volunteer Voice and an updated Upcoming Events section.
STARR February 2022 News: National Black History Month, Spotlight on the STARR Site of the Year, this month’s Advocacy Ace Awardee, and so much more…
Learn more about CenExel=ACMR, the STARR Site of the Year, along with another RockSTARR Advocacy Ace, and new advocacy partner, People USA.
We’ve kicked off the February News with a survey on what everyone would like to see as one of the next Site:Site Zoom Calls so we can make sure we’re giving you what you want. Also included is February’s Volunteer’s Thoughts on Research and an updated Upcoming Events section.
STARR January 2022 News: Recapping the Annual STARR Awards Presentation, Project RockSTARR Advocacy Ace Awards, Key Clubhouse of South Florida Spotlight, Upcoming Partner Meetings, News and Updates
Just in case anyone missed the Annual Awards Presentation, we’ve got the recap in The January 2022 STARR News.
Learn about National Mentoring Month in this month’s news. The January STARR News featured the Key Clubhouse of South Florida, the newest STARR Advocacy partner. We’ve featured another RockSTARR Advocacy Ace award winner, a new Volunteers’ Voice quote, and updated our Upcoming Events section.
STARR December 2021 News: Annual STARR Awards Presentation, Year-end Updates on STARR Programs, New Certified Site Spotlight, Project RockSTARR Advocacy Ace Awards, Upcoming Partner Meetings, News and Updates
December was super busy and we covered a lot of great stuff in the December Newsletter, including the Annual STARR Awards Presentation to the 2021 Sponsor of the Year, CRO of the Year, Site of the Year, Advocate of the Year, and the Lewy! The virtual awards presentation was a fabulous way to close out 2021!
We provided year-end updates on all of the STARR programs — if you want to know what is going on with the STARR, that is the section to read as we cover info and updates on 6 programs and 4 workgroups.
We presented the first RockSTARR Advocacy Ace Awards to 32 phenomenal researchers whose screened volunteers have designated the most donations to their local advocacy organizations. We’ve featured the first Advocacy Ace in the newsletter.
We’ve introduced a monthly article written by individuals with lived experience. This month, we featured an article from Douglas Meron, who lives with Schizophrenia and wrote about the importance of building a support system.
STARR November 2021 News: Latest STARR Site:Site Zoom Conversation on Decentralized Trials, National Caregivers Appreciation Month, Spotlight on AFSP, News and Updates
In November, we hosted a Site:Site Zoom Conversation on Decentralized Clinical Trials: Site Perspectives and Next Steps. Co-Hosts Judy Galindo and Nelson Rutrick hit on how sites are offering flexible (hybrid!) study capabilities, as well as the future outlook and what sites can do in response to DCT pressure.
The November Advocacy Spotlight was on the American Foundation for Suicide Prevention (AFSP) and we updated our Upcoming Events section to include a few links to YouTube-accessible meetings from the recent past.
STARR October 2021 News: Latest STARR Site:Site Zoom Conversation on Staffing, National Depression and Mental Health Screening Month and ADHD Awareness Month, Introducing the new Study Volunteer Transition Workgroup, Upcoming Partner Meetings, News and Updates
In October, we hosted a Site:Site Zoom Conversation on staffing and current site operations, which was an open, honest conversation about staffing and offered many great tips on how to keep the staff that you have, as well as deal with some of the challenges of outside study staff (CRAs, sponsors, etc.). If you missed it, be sure to check out the video (in a link to be provided in the November Newsletter!).
We launched the Study Volunteer Transition Workgroup to create resources for volunteers transitioning out of studies.
We posted information on NAMI-NYS’s Education Conference, where STARR had a virtual booth promoting the National Call to Action to Support Mental Health Research. We also posted information on the American Brain Coalition’s Annual Meeting, which we are super excited about!
STARR September 2021 News: Latest STARR Site:Site Zoom Conversation, Suicide Prevention Awareness Month, New Advocacy Partner, New STARR Employee, NIH’s ARPA-H call, News and Updates
September’s Newsletter was a busy month for all: Along with being Suicide Prevention Awareness month, the STARR hosted a Site:Site Zoom Conversation on the impact of the Delta Variant on site operations; we welcomed new STARR employee Mallory Mercer and new advocacy organization, The Jed Foundation.
We launched a volunteer testimonial segment, which we plan on including in all of our future Newsletters, social media, and we’re happy to share these with the community.
We reported on the August 16 NIH’s ARPA-H listening session focused on “Advocates for Research on Neurology and Mental Health,” and issued a call to action to support the National Call to Action to Support Mental Health Research.
STARR July 2021 News: BIPOC Mental Health Awareness Month, National Suicide Crisis Hotline, Advocates in the News Supporting Research, News and Updates
July’s Newsletter included the information on BIPOC Mental Health Awareness month, with a link to MHA’s ‘Strength in Communities’ toolkit. We’ve got information and updates on *988, the national mental health and suicide crisis hotline number that will go into service across the country in 2022, as well as a link to a phenomenal tv news story featuring our friend, Matthew Shapiro of NAMI-NYS discussing a new schizophrenia treatment and the need for new mental health treatments.
We’ve issued a call for topics for our monthly Site:Site Zoom Conversations, as well as a call to action to support the National Call to Action to Support Mental Health Research.
STARR May 2021 News: Mental Health Awareness Month, Interactive Zoom Conversation on Research Sites’ Role in the Community: Working with Local Advocacy & Non-Profit Groups, the latest STARR Podcast, News and Updates
Although Mental Health Awareness Month has been observed annually since 1949, the COVID pandemic brought mental health into special focus, having had a profound effect on the mental health of everyone. This year, more than ever before, it is critical to do what we can to reduce the stigma of mental health disorders AND mental health research.
In May, we’ve included the link to register for the upcoming Research Sites’ Role in the Community: Working with Local Advocacy & Non-Profit Groups zoom conversation on research sites’ role in their local community as a trusted and valuable part of the healthcare ecosystem, with tips on how to build strong relationships with the local advocacy and non-profit groups.
Be sure to check out this month’s featured podcast: Andrei Pikalov, MD, PhD, Vice President and Head of Global Medical Affairs! Check that out HERE.
STARR April 2021 News: Interactive Zoom Conversation on Trauma Informed Care, The Confess Project, PsychU’s STARR interview, the latest STARR Podcast, News and Updates
April was especially busy with the launch of the National Call to Action to Support Mental Health Research — if you haven’t joined the Call yet, do so now HERE!
This month, we’ve included the link to register for the upcoming Trauma Informed Care zoom conversation and May’s Mental Health Awareness Month toolbox, as well as an introduction to our dear friend, Lorenzo Lewis, the founder and CEO of the Confess Project, .
Be sure to check out this month’s featured podcast: Michael Pollock, CEO of one of our favorite advocacy organizations, the Depression and Bipolar Support Alliance (DBSA)!
STARR March 2021 News: Zoom Conversation to discuss the launch the National Call to Action to Support Mental Health Research, STARR Diversity Workgroup Update, and the American Brain Coalition’s Initiative for an FDA Neuroscience Center of Excellence
This month’s STARR News includes the link to the zoom call around the launch of the National Call to Action to Support Mental Health Research — our biggest initiative ever!
Co-hosted by three members from the Call to Action Steering Committee, Andrei Pikalov, Sunovion, Emily Freitag, Sage, and Adam Simmons, Alkermes, this zoom call lays out the details of this important program. We need everyone’s help and active participation to ensure the success of the Call to Action and more importantly, support mental health research!
Read about the American Brain Coalition’s Initiative for an FDA Neuroscience Center of Excellence, another great initiative that deserves our support.
STARR February 2021 News: Interactive Zoom Conversation with Advocacy on Building Relationships, Oregon’s CAHOOTS Program, Latest STARR Podcast, News and Updates
Since we skipped January’s News, we doubled up in February! If you haven’t checked out NAMI’s podcast with Tim Black on their CAHOOTS program, we strongly encourage you to take a few minutes to learn about this effective and successful program. Also, meet Kevin Lynch of The Quell Foundation, and learn about the latest additions to the STARR program line-up!
STARR December News: Happy Holidays! 2020 STARR Awards Announced!
In case you missed it, The Starr Coalition hosted our 2020 Annual Star of Excellence Awards Ceremony via Zoom this year and it was like a wonderful holiday party! Check out all of the winners in the STARR December News, along with updates on what to look forward to in 2021 with the STARR Site Certifications.
STARR November News: Happy Thanksgiving! STARR 2020 Awards, Lisa Horowitz, NIH, Featured Podcast, News and Updates
November’s STARR News features STARR 911, this month’s Featured Podcast, and the announcement on the Annual STARR Awards Ceremony!
Check it out here!
STARR News: Interactive Zoom Conversation, New Diversity Workgroup, Advocacy Partners, News and Updates
October’s STARR News features updates on the latest STARR Workgroup on Diversity, info on the interactive zoom conversation on recruitment, The STARR’s new advocacy partners, and more.
Check it out here!
STARR News: Interactive Zoom Conversation, New Certified Sites and Advocacy Partners, News and Updates
September’s STARR News features updates on the latest STARR Certified Sites, info on the interactive zoom conversation on site operations in a pandemic, The STARR’s new advocacy partners, and more.
STARR News: Interactive Zoom Conversation, New Certified Sites, News and Updates
June’s STARR News features updates on the STARR Site Certification program, information on the site-to-site interactive zoom conversation, connecting with advocacy, and the latest STARR podcast with Dr. William Potter, NIMH.
STARR News: Site-to-Site Webinar, Mental Health Awareness Month 2020, News and Updates
April’s STARR News features updates on the STARR Site Certification program, information on the Site-to-Site Webinar, connecting with advocacy, and the STARR #ResearchResponds webpage.
STARR News: Site Certification, COVID-19
March’s STARR News features updates on the STARR Site Certification program, COVID-19 outbreak information, updated Sponsors for the certification program, and the latest sites, podcasts, and survey question.
Recap from CNS Summit 2019
Another amazing CNS Summit in the books for The STARR Coalition! Not only was the the STARR Silent Karaoke booth a huge hit, but on Saturday afternoon, leaders from across the research industry and advocacy met to attend The STARR Coalition Breakout Session. We discussed the STARR Site Certification and awarded innovative organizations and programs changing the conversation around cutting-edge CNS research.
Check out the photos here!
STARR News: Mental Health Awareness Month 2019
Patrick Kennedy at the CNS Summit
The Honorable Patrick J Kennedy joined The STARR Coalition during the CNS Summit. Read more about it!
Save the Date
Please join us during the CNS Summit this year!